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Veronika Denner: EndEndoSilence Drives National Conversation on Endometriosis Care Failures
Veronika Denner/LinkedIn
Nov 22, 2025, 14:52

Veronika Denner: EndEndoSilence Drives National Conversation on Endometriosis Care Failures

Veronika Denner, Research Fellow at Big Data Institute, shared a post by Hannah Katinka Beck, Volunteer Managing Director at EndEndoSilence, on LinkedIn:

“Super proud of my dear friend and EndEndoSilence founder Theresia Crone, who recently aired on one of Germany’s biggest political podcasts, ‘Lage der Nation’ (‘State of the Nation’, with 1-2 million monthly listeners), where she spoke openly and powerfully about what it really means to live with endometriosis: years of pain not taken seriously, oftentimes no symptom-free days, and a long, exhausting search for help.

This suffering is not inevitable, but rather the result of systemic neglect of women’s health. This is why we at EndEndoSilence demand

  • A full, insurance-covered gynaecological history + ultrasound exam by any gynaecologist rather than only in specialised endometriosis centres, so that patients don’t have to wait 10 years for a diagnosis
  • Mandatory endometriosis and adenomyosis training for doctors across multiple disciplines, not just gynaecologists (endometriosis is a whole-body condition with whole-body symptoms!)
  • More research funding so scientists can finally uncover the mechanisms of endometriosis and develop treatments that genuinely work.

Our message is now reaching a national audience and that’s exactly how change begins.

If you speak German, I really encourage you to check out the episode!”

Quoting Hannah Katinka Beck’s post:

“Endo in a position! Our board member Theresia Crone was a guest on the “State of the Nation” podcast and explains what it can mean to live with endometriosis: Doctors do not take pain seriously, hardly any symptom-free days for years, stressful and long search for help. What we therefore demand from our political representatives:

  • Extensive anamnesis paid for by the health insurance company with gynecologists (and not only in the endocenter) – so that we no longer have to wait 10 years for a diagnosis.
  • Mandatory further training on endo and adenomyosis for physicians of various disciplines.
  • More research funding so that scientists can find out what causes Endo and which drugs really help.

Let’s go.”

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adenomyosis Adenomyosis Training Advocacy Efforts Big Data Institute EndEndoSilence endometriosis Endometriosis Awareness Endometriosis Centres Fertility Fertility News Fertility Solutions Gynaecological History gynecologists Hannah Katinka Beck Health Education Healthcare Inequality Mechanisms of Endometriosis Medical Training Patient Empowerment reproductive health Reproductive Medicine State of the Nation Theresia Crone Veronika Denner Women's Health Advocacy Women's Health Issues Women’s Health
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